Monday, June 12, 2023

Rosewood

 Darkness has reached Truckee Meadows and my ten years on jones Street has concluded. 

I’m northeast of downtown on Silverada Boulevard at Rosewood Rehabilitation Center. 

This place is a revelation. Incredibly lush vegetation and serious flowers. The desert has been pushed back. There’s green grass along the walk outside my glass doors. A marvelous patio and with wonderful scents. 

Rosewood has eighty clients so I have to be patient. 

The spaghetti dinner was fresh and tasty. I’m much pleased. 

My bed has a quality twin mattress and it’s clean and comfortable. This room is pleasant and the temperature just right.

Rosewood has a mostly Latin female staff and they are professional and sincere. I am impressed at the grace and dignity. 

They accepted my Amazon package and agreed to discuss my French Press coffee. 

I have to temper my enthusiasm.


The patio at my right.

Regrettably three litters of  oxygen is not enough I’m up to three and a half. This keeps my oxygen at ninety six.

My pulmonologist wants me in hospice but I’m not ready for the last mile. 

Tonight I will sleep better than in recent months and perhaps start to get a little bit better. 

Sunday, June 11, 2023

Saturday night 10 June 2023.

 Saturday night 10 June 2023.

No I do not want to do it now but I do know that in a matter of weeks or months  I will tell the nurse I’m ready to go home. 

Greetings from the eighth floor of the Tahoe building at Renown medical center in Reno Nevada. I am sitting here in the dark I am dealing with the fact that my condition pulmonary fibrosis is taking a turn for the worse.

Today I was told that there is some sepsis in my lower left lung and they are giving me medication for that.


I am in my third crisis in six weeks

 As long as I’m laying down my oxygen level can reach 99 and my heartbeat can get to 59.

 Should I stand up for any reason whatsoever everything will crash my oxygen will drop to 73 and my heartbeat will go up to 124. 

I’m not in any particular pain or discomfort but of course I’m a struggling intellectually and emotionally with the fact that I cannot get up and walk around I wouldn’t make it 2 feet.

The doctors are telling me that this current bout of pneumonia and stress very IPF it’s because of the environment in my apartment on Jones Street I cannot go back to  the apartment even only for a few minutes because they very serious increase in the troubles that I have.

The doctors are telling me that they believe that I will recover from current exacerbation.

They already know that when the damage is done there’s no recovery.

On Monday I will be taken from here at Renown to the Rosewood rehabilitation Center which of course is just a middlebrow nursing home.

Original plan was that Dwight Poplin who has own respiratory problem. He will go up to the apartment and get a number of items for me and bring them to Rosewood.

Considering the conditions in the apartment I really don’t want to expose anybody yet there are things that I do need we’re going to have to figure out some kind of a plan for someone to go in there wearing a mask in able to protect himself and I get about a dozen items that I want but I do not want to sacrifice.

Over the last four weeks I am impressed  by the amazing people who have come into my life and helped me. A social worker came into my life and she convinced Clark Realty to put down the floor rip up the old carpet that was a miracle number one.

Dwight Poplin came along and he willingly removed probably a ton of junk from that apartment my brother Bruce came from Florida I pretty much did the same thing in my wildest imagination I did not expect either of them to do anything and I didn’t even know much about Dwight until two weeks ago.

There is a possibility that There’s asbestus  or traces of it in that apartment and exacerbated my condition over a period of several years we don’t know but I would like to have an inspector come and take a look at that place and see if there is any evidence of asbestos Dwight says they found traces of asbestos in his apartment when they were working on the wall about a year ago.

1140 Jones Street was built in 1964 and at that time of course they were unit especially the ceiling in order to prevent the spread of fires.

I do not believe the Clark Realty the owner or anyone else has engage in criminal neglect I think they’re just simply unfortunate consequence of things.

It is possible that the fire on July 4, 2015 started at all the troubles down at round Mountain at a barbecue I did not take it seriously and I did not wear a mask.

I was in St. Mary’s Hospital for 15/16 and 17th of 2015 that was the first time I went to the hospital because of bronchitis.

I think it’s safe to say that I have been suffering from from a respiratory illness since 2015 that’s eight years and I think that the IPFs simply the end product of this long struggle.

Being realistic I do not know how much longer I’m going to live but I think it’s safe to say that the day I’m  able to get up and walk anywhere is over.  if anything I’ll be in a wheelchair with oxygen.

I have no real idea what Rosewood is going to be like but I do know that it is basically my last chance I have to make it work.

I am hoping that I can get brownie my blanket on Jones Street my French press and the candy I have my medicine about a dozen stuffed animals. but I’m very fond of how to be able to get those things and have them at Rosewood they will be a little bit of comfort in my last days.

I want to get some photographs the cremains of Osmo Backo and a couple of other items out of that apartment that will be the challenge this week.

I know I know absolutely that I’m going to die very likely within the next 2 to 3 months I don’t think there’s any way to avoid it.

I have read on the Internet people who had IPF comes that day when you realize you’re done and you tell your nurse I want to go home and They know what to do.

I had hoped that I would see 2024 but I doubt it I think that I’m finally beginning to realize how sick that I really am and I’m not going to live much longer I’m not gonna leave the world screaming or cursing at the darkness.

 I am not religious so I’m not worried about that but I do know that this is something that was developing for years but I did not understand it and now it’s too late.

I will accept my fate I will not be happy with it but I do know that it’s only a matter of a few weeks or maybe a couple of months yes my turn will come and I will tell the nurse I’m ready to go home.

Friday, June 02, 2023

On a clear day I can see forever


On a clear day I can see forever

 It’s Friday, in Reno with a bright blue sky. Very nice. I’m sitting here on a not so comfortable chair in the middle of my room and trying to breathe. I am now using voice to text which is pretty decent. It makes some mistakes, but I can put up with that. I know that I have no real choice when I try to write my finger tremble even though I try to remain very calm and I know that there’s not a lot I can do about that it’s part of the process as the price for pulmonary fibrosis. 

Today Friday I was informed that I have been excepted. Add to Rosewood Rehabilitation Center tarpon Silverado Boulevard in Reno. I am very very happy. Of course I know what does mean where is the last stop in my long life but Well is I could be a lot worse.

Rosewood is not the Hyatt Regency but it’s not motel six it’s more like a Holiday Inn. It was built in the mid-1960s and it reflects the architecture of that time. I’m satisfied with that since the 1960s but when I was a teenager the people there are very decent and they will treat me well and I will have to adjust to it. Some of the things that I can do. I will not be able to do there. I like to drink coffee and go on YouTube at three in the morning. Not going to be able to do that anymore. Respect my roommate and rules of a place I have been told by everybody that the food is very very good and I’m looking forward to that.

I have no illusions about what is going to happen. It is the end of my active life and I will be in a medical setting people will be watching me to make sure that I’m comfortable so that the last day of my life will be OK I know that I have to do everything I can to get as much exercise not to strain myself, but to be active and to keep my lungs, healthy and busy. 

This text by voice saying it’s quite interesting. I’ve known about it but never really used it but the fact that I could put some punctuation and it is really quite nice, so I will learn more about this and I will come back. I plan to put daily entries to-my Audiea Blog  and people can read it and see the progression that I moved closer and closer to that final fading light but like Dylan Thomas said rage rage rage never surrender to the fading light never go quietly into the night and believe me. My own personal way, I’m going to do everything I can to stay alive to get the most of it and when it’s  time for me to leave, I’m going to do it quietly and graciously but in my heart I will be screaming at the fading light.

Rosewood